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New Post 4/29/2008 11:12 AM
  a-caring-mom
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Medication Miracle 

After years of watching one of our children suffer with signs and symptoms of depression, ptsd, anxiety and social challenges, trying for years to get a diagnosis and treatment started, we finally had a breakthrough this year. 

The antidepressant medication is making such a huge, positive difference.  No more endless (3 hour+) crying spells, hateful self-talk, sleepness nights plagued by severe nightmares, frequent panic attacks, and parallyzing anger.  Our child kept telling us "I don't know why I feel this way.  I love you both, it's not you, it's something inside of me."  We spent hours trying to counteract the hateful self-talk with loving truths and affirmations, reassurances, distractions, recreation, art, coping skills and more, to little avail until now.  We continue to work with a team of people including a therapist. 

The doctors told us there was no straightforward way to test children for biochemical depression (e.g. serotonin levels, etc.).  We went through several series of counseling but the persistent symptoms kept worsening.  Finally, we connected with a psychiatric nurse willing to try medication.  We would of course rather that medication was not necessary and that the symptoms would get better on their own, but for this situation that was not the case.  Now our child has a much better opportunity to learn, grow and enjoy these precious years.  An accidental missed dose makes a noticeable difference. 

 
New Post 2/1/2009 7:25 AM
  Annemarie
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Re: Medication Miracle 

I have just joined this website and have been looking around the different pages when I came upon yours. I just have to tell you what a wonderful mom you are that you continued to battle for the help your child needs. I don't know how old you are but, being a woman of 50+ years that I now know that I suffered from depression from my very young years into my adulthood and to present day, to have had someone to at least try to help me would have been a miracle all its own. Why in the world we do not see, or accept, the fact that children can suffer from depression is beyond me. We truly do them and our families, a great disservice by being afraid to even consider such a fact. I do know that children and families are destroyed because it is not dealt with...the child inparticular. May I say that I know what love, caring and work it takes to get through the line of doctors, teachers, therapists and so on to get the help you know your child needs. God has a special place in heaven for you for fighting for your childs mental health. You are also in a great position to educate other parents regarding their children.  Good Job.

 
New Post 2/8/2009 2:28 AM
  a-caring-mom
3 posts
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Re: Medication Miracle 
Modified By admin  on 2/8/2009 3:57:20 AM)

Thank you for such encouraging words. 

I recall times as a child wishing adults could "see" what was going on at our house, and/or "do" something about it.  I had to wait until I was old enough to do something about it and vowed to break the cycle.

I know for my child, it is especially difficult when the disability, pain and suffering continues unrecognized, as though invisible, by adults and/or peers -- and yet, how often this can be the case for people with physiological disabilities as well.  I was shocked to see my child suffering, at such a young age, so intensely, trapped, trying so hard to make sense, struggling with intense emotions as if on fire, silently screaming, wanting it to stop, wanting not to see anyone get hurt or suffer like her or from her, afraid of herself, endlessly trying to pin false guilt and shame on herself, reliving traumas through nightmares and flashbacks, losing her faith, her dreams, her hope, her strength.  Her words were unmistakeable, unforgettable.  I am grateful she could communicate and trusted me, and that I was able to hear and see what was happening. 

At times I definitely felt alone -- like when school teachers could not acknowledge, recognize or respond appropriately to her challenges -- I know she cried out for help at school several times to no avail and in some cases was humiliated and reprimanded before her peers, where she should have been uplifted and supported for having the courage to show up again and again.  She tried her best to mask it at school, sometimes successfully.  Professional evaluators, nonetheless, ultimately identifed and validated our concerns.  Finally, someone helped me describe it -- she was "imploding" -- rather than "exploding" as some do, punching holes in walls or displaying emotions with physical release.  Instead, she turned pain inward and tried to hide it, until she couldn't hold it in anymore -- often erupting after school.  She also suffered night terrors and frequently woke up throughout the night, which led to falling asleep in class and other complications. 

We worked hard to explain her case for accommodations, permissions, and services at her school.  OFSN and ORPTI and the legal help we got made a huge difference.  This year, we finally managed to make progress towards getting her some of the services and accommodations.  I do wish the systems were working better in our area, that school staff were less defensive, restrained and formal, in general -- I feel strongly that most of the accommodations requested were simple matters of common courtesy with little financial impact, if any -- like permission to go to the bathroom when she needed to, or permission to carry her cell phone on her body (in a pocket) with an agreement that it would not make any sounds, but she could look at one of the pictures on it -- which helped her calm down and feel safe enough to continue working in class (alternatively, a bracelet or pendant). 

Little by little, if we all do something, we'll get somewhere better than we are today. 
I am hoping for and working towards a better legacy for my grandkids.
 
May you and others find relief from isolation in the company of so many caring folks connected to this organization!
 

One more note on medication: 

As hormonal changes continue, we've had to make some minor changes to the medication dosage(s), but I am glad to report that she's able to smile again, making great strides. 
 
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